Data Protection & Privacy

Privacy Policy

Genomic Sentinel is committed to protecting the privacy and security of your personal and genomic data. This policy explains how we collect, use, store, and protect your information in compliance with applicable laws and regulations.

Effective Date: January 1, 2025|Last Updated: December 28, 2025

Privacy at a Glance

End-to-end encryption for all genomic data

No selling of personal or genetic data

HIPAA, GDPR, and GINA compliant

You control your data at all times

Data Collection

Information We Collect

We collect different categories of data to provide our genomic intelligence services. Each category has specific retention periods and legal protections.

Genomic Data

  • Raw sequencing data (FASTQ, BAM, VCF files)
  • Variant call files and annotations
  • Gene expression profiles
  • Epigenetic markers and methylation data
  • Pharmacogenomic profiles
Retention: Duration of service agreement + 7 years
Legal Framework: HIPAA, GINA, State Genetic Privacy Laws

Clinical Data

  • Patient demographics (de-identified)
  • Medical history summaries
  • Laboratory results
  • Treatment records
  • Consent documentation
Retention: Duration of service agreement + 10 years
Legal Framework: HIPAA, HITECH, State Health Privacy Laws

Account Data

  • User credentials and authentication tokens
  • Organization information
  • Billing and payment records
  • Communication preferences
  • Audit logs and access records
Retention: Duration of account + 3 years
Legal Framework: GDPR, CCPA, Standard Data Protection

Technical Data

  • IP addresses and device identifiers
  • Browser and system information
  • Usage analytics and patterns
  • Error logs and diagnostics
  • API access logs
Retention: 90 days (logs), 2 years (analytics)
Legal Framework: GDPR, ePrivacy Directive
Regulatory Compliance

Compliance Frameworks

We maintain compliance with major privacy and data protection regulations worldwide.

Health Insurance Portability and Accountability Act

U.S. federal law protecting sensitive patient health information

Fully Compliant
Business Associate Agreements with all partners
Administrative, physical, and technical safeguards
Regular risk assessments and audits
Breach notification procedures
Data Subject Rights

Your Privacy Rights

You have comprehensive rights over your personal and genomic data. Exercise these rights at any time through your account dashboard or by contacting us.

Right to Access

Request a copy of all personal and genomic data we hold about you.

Right to Rectification

Request correction of inaccurate or incomplete personal data.

Right to Erasure

Request deletion of your personal data under certain circumstances.

Right to Portability

Receive your data in a structured, machine-readable format.

Right to Restrict Processing

Request limitation of how we process your personal data.

Right to Object

Object to processing based on legitimate interests or direct marketing.

Special Provisions for Genomic Data

Genetic information receives enhanced protections under our policy

No Genetic Discrimination

We will never share your genetic information with employers, insurers, or any third party that could use it for discriminatory purposes. This commitment goes beyond legal requirements under GINA.

Research Use Consent

Your genomic data will only be used for research purposes if you provide explicit, informed consent. You may withdraw this consent at any time, and your data will be removed from any ongoing research studies.

Family Member Considerations

We recognize that genetic information may have implications for biological relatives. We provide guidance on sharing genetic findings with family members and maintain strict confidentiality unless you authorize disclosure.

Incidental Findings Protocol

If our analysis reveals clinically significant incidental findings, we follow ACMG guidelines for disclosure. You may opt in or out of receiving incidental findings through your consent preferences.

Privacy Questions or Concerns?

Our Data Protection Officer is available to address any privacy-related inquiries.

Data Protection Officer

[email protected]

Breach Notification

[email protected]

Genomic Sentinel, Inc.